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Welcome to My Sarcoidosis Story

Strength

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Going Within

I have been silent for a while. Silence was necessary because I just did not have anything positive to say. It was time to go within,...

Some days I struggle.

So, let’s get real about mental health and pain. Before I start, I want to be clear about two things. First, I am fortunate I have...

Just keep moving...

I wish I could say “just keep moving forward” but I am learning my journey is not about forward movement. It is a dance. Some days I...

Looking for inspiration.

Today was a hard day. Within five seconds of my feet hitting the floor I knew today was going to be a hard day. My feet hurt. My tummy...

Waiting

Life with an incurable disease features a lot of waiting. If you have ever asked for patience and achieved that skill you will be using...

Meal Planning

I thought it might be helpful for me to share how I handle meal planning. My approach to meal planning has a foundation in helping Ed...

One day at a time; one moment at a time.

Today is one of those days where I remind myself to take one day at a time, and at times one moment at a time. By all accounts, today has...

Taking control.

I don’t know about you, but when I receive bad news there is a small period of time where I allow myself to feel all the feels. After...

You are not alone.

There have been times since September 30, 2020 when I have felt very alone. I have had more than one of my lovely friends, family, and...

"Remission"

For those of you who know me, you know I am a goal-oriented person. When I was told our goal with my Sarcoidosis was to achieve...

Prednisone

Prednisone is the gold standard treatment for Sarcoidosis. It is a great drug. It is the drug that put me in to “remission” by January of...

Like being kicked in the chest by a horse.

On September 30, 2020, I began treating my Sarcoidosis. Treatment consisted of 60mg of prednisone to start with. It was my understanding...

Houston we have a problem.

After April 10, 2019, I was very focused on recovery, finishing my semester, and getting ready for my first international trip to see my...

E.T.

I consider this story the beginning of my Sarcoidosis journey although in reality it likely began long before this. On April 10, 2019, I...

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